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Thursday, October 15, 2015
The Spoon Theory, Thank you Morgan
Our niece, Morgan-Brooks Institute graduate, former Miss Bel-Air and all around great person also has celiac's disease and fibromyalgia. She found an article entitled "The spoon theory" to explain what it's like to live with chronic disease.
Perfect and effective. I have: RA, OA, RSD, degenerative disc disease, scoliosis, severe osteoporosis, ankylosing spondylitis, dupuytren's contracture, fibromyalgia and have been literally hit by 2 trucks that then gave me concussions, frozen shoulder and more. However, I LOOK in excellent health. Hell, my husband lives w/ me and gives me my humira and has taken me for countless epidurals and he probably doesn't realize what my "life" is like.
Instead of my usual weekly musing-I'd love for you all to read "The Spoon Theory" and what life is like for those of us with unseen "challenges":
http://www.mtv.com/news/2344740/lupus-the-spoon-theory/
Perfect and effective. I have: RA, OA, RSD, degenerative disc disease, scoliosis, severe osteoporosis, ankylosing spondylitis, dupuytren's contracture, fibromyalgia and have been literally hit by 2 trucks that then gave me concussions, frozen shoulder and more. However, I LOOK in excellent health. Hell, my husband lives w/ me and gives me my humira and has taken me for countless epidurals and he probably doesn't realize what my "life" is like.
Instead of my usual weekly musing-I'd love for you all to read "The Spoon Theory" and what life is like for those of us with unseen "challenges":
http://www.mtv.com/news/2344740/lupus-the-spoon-theory/
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I followed the link and read the post. It gave a very clear and important insight into what it is like to have to live with an invisible illness.
I followed the link as well. I do believe that age and habit does give you some coping skills. My wife suffers with chronic knee pain and I have some neurological pain that comes and goes. Then there's just the aches and pains of getting older. By the time you truly hit the golden years, you're more or less used to it. But that said, I can't imagine having something that serious where you have to count out every activity you can do and be able to cope with the pain.
I've lived this way since 1997-and yes, I do have to "watch my spoons". Take a few weeks ago when I went to OC with our daughter to visit my parents and sister-Steve wanted to go the day before for a day trip to Flagstaff and check out a new restaurant.
I had to point out to him that I was going to be in the car the next day for 4 hours and then the day after for another 2. With my back/joints sitting through another 3 hours of driving, dinner and mountain hills for whatever walking we would want to do-there was NO way I could do both. I also had to make sure I rested up and did the required stretching and walking b/f I got into the car for that long drive.
Still got to the hotel wanting to vomit from the pain in my back and it was a very painful 5 days.
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I had to point out to him that I was going to be in the car the next day for 4 hours and then the day after for another 2. With my back/joints sitting through another 3 hours of driving, dinner and mountain hills for whatever walking we would want to do-there was NO way I could do both. I also had to make sure I rested up and did the required stretching and walking b/f I got into the car for that long drive.
Still got to the hotel wanting to vomit from the pain in my back and it was a very painful 5 days.
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